Ehlers-Danlos syndromes
Overview
Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.
Symptoms
There are several types of EDS that may share some symptoms. These include: an increased range of joint movement (joint hypermobility)stretchy skinfragile skin that breaks or bruises easily EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling.
Treatment
There's no specific treatment for EDS, but it's possible to manage many of the symptoms with support and advice. People with EDS may also benefit from support from a number of different healthcare professionals. For example: aphysiotherapistcan teach you exercises to help strengthen your joints, avoid injuries and manage painanoccupational therapistcan help you manage daily activities and give advice on equipment that may help youcounsellingandcognitive behavioural therapy (CBT)may be useful if you're struggling to cope with long-term painfor certain types of EDS, regular scans carried out in hospital can detect problems with internal organsgenetic counsellingcan help you learn more about the cause of your condition, how it's inherited, and what the chances are of passing it on to your children Your GP or consultant can refer you to these services. If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP. To find out if there are any services in your area: ask the reception staff at your GP surgery check your GP surgery's website contact your integrated care board (ICB) –find your local ICB search online for NHS treatment for Ehlers-Danlos syndromes near you If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP. To find out if there are any services in your area: ask the reception staff at your GP surgerycheck your GP surgery's websitecontact your integrated care board (ICB) –find your local ICBsearch online for NHS treatment for Ehlers-Danlos syndromes near you